so more information

We met with the surgeon today.
He said: the crazy dig in the wound and rip open the healing that nurse from home care does is not ok. He actually wrote a "don't dig around in the damn wound" prescriptions. Not in those words, but close.

The ostomy nurse helped us sort out what system to use. They also said they were calling the home care agency. Funny we got customer satisfaction survery call 4 hours after we left that doctor's appointment. How likely is that to be a coincidence???

He is really really nice. Kept sort of apologizing for all the inconvenience of him having fluid draining and the open wound. We weren't upset about that we were upset about the way he sat in the ER for an hour and wasn't seen. Whether it's true or not he also said he has had patients call from the ER who are upset.

So tomorrow we see the kidney guy.

As far as the fluid in his belling they are saying it will take a long time to get rid of it. It took a long time to get like that. It was caused by the lose of protien and was going on back 10/8 and that is part of why jeff was so sick after the surgery.

So here we are, waiting again.